Book Detail
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Medicine > Genetics
Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine
Mccormick, Jennifer B.
ISBN 13: 
9780128198032
ISBN 10: 
0128198036
Category: 
Genetics
Edition: 
1
Publisher: 
Elsevier
Publication Date: 
08/2021
Format: 
Paperback
Status: 
Not Yet Published
Imprint: 
Academic Press
Audience: 
Professional and scholarly
Pages: 
360
Weight: 
2
Retail Price: 
150.00 (Tentative Price May Change)
Quantity On Hand: 
0
Quantity On Order: 
0
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Synopsis:

Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.

Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing.



  • Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing
  • Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others
  • Features chapter contributions from international leaders in genomic data sharing

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